Families for HoPE, Inc. was formed in 2006 by a group of parents of children diagnosed with holoprosencephaly (HPE). Families for HoPE is incorporated in the state of Indiana and is a charitable organization as determined by Section 501(c)(3) of the Internal Revenue Code.
These dedicated parents first met through an online support group started by a small group of parents seeking information about HPE. Today, that online support group is over 500 members strong!
Families for HoPE seeks to share the HoPE in HoloProsEncephaly! Our programs include:
parent-to-parent support
grief support
educational materials about HPE
educate the medical community
public awareness
We hope you will join with Families for HoPE in sharing the hope that we have found in HoloProsEncephaly.
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