Families for HoPE, Inc.

Sharing the HoPE in HoloProsEncephaly


Families for HoPE, Inc. is a 501(c)(3) nonprofit organization formed to address the needs of families and children diagnosed with holoprosencephaly (HPE) and related brain malformations.





Families for HoPE seeks to provide support for all stages in the HPE journey:

Families of unborn infants receiving a diagnosis of HPE


Families of newborns diagnosed with HPE at birth


Families of infants with delay in diagnosis of HPE


Families of children with a diagnosis of HPE


Families of adults with a diagnosis of HPE


Families grieving the loss of a child with a diagnosis of HPE